The COSEB initiative aims for standardized and uniform measurement by developing core outcome sets for epidermolysis bullosa. This report describes the COSEB workshop organized in December 2023, which led to a broad stakeholder consensus-based roadmap. Moreover, it highlights novel features of COSEB, including the pro-active engagement of stakeholders from the very beginning and the appointment of a multi-stakeholder advisory panel.
Towards a roadmap for COSEB: the next steps in harmonization of outcomes for epidermolysis bullosa / Korte, E. W. H.; Pasmooij, A. M. G.; Bolling, M. C.; Hickey, S.; Hussain, S.; Kiritsi, D.; Kottner, J.; Prinsen, C. A. C.; Sauvestre, A.; Sendin, G.; Spuls, P. I.; Tarrats, N.; Wally, V.; Welponer, T.; Laimer, M.; Van Den Akker, P. C.; Bardhan, A.; Bataille, P.; Bodemer, C.; Bolling, M.; Bruckner, A.; Chiaverini, C.; Clemett, V.; Collins, C.; Colmant, C.; De Rosa, L.; Duipmans, J.; Ebens, C.; Fernandez, M. F.; Gorell, E.; Guez, S.; Has, C.; Hickey, S.; Hsu, C. K.; Hussain, S.; Jain, R.; Kenny, T.; Kern, J. S.; Khanna, D.; Kiritsi, D.; Kitzmüller, S.; Korte, E.; Kottner, J.; Laimer, M.; Lara-Corrales, I.; Lee, M.; Li, W.; Lospalluti, L.; Marinkovich, M. P.; Martinez, A.; Mellerio, J.; Moss, C.; Mullins, O.; Murrell, D.; Ott, H.; Palisson, F.; Paller, A.; Pasmooij, M.; Petrof, G.; Pope, E.; Prinsen, C.; Salamon, G.; Salas-Alanis, J.; Salavastru, C.; Sauvestre, A.; Scherer, S.; Schräder, N.; Sendin, G.; Sprecher, E.; Spreitzer, C.; Spuls, P.; Tarrats, N.; Van Den Akker, P.; Wally, V.; Welponer, T.; Wertheim-Tysarowska, K.; Zahn, T.. - In: BRITISH JOURNAL OF DERMATOLOGY. - ISSN 0007-0963. - 191:3(2024), pp. 463-465. [10.1093/bjd/ljae200]
Towards a roadmap for COSEB: the next steps in harmonization of outcomes for epidermolysis bullosa
De Rosa L.;Li W.;
2024
Abstract
The COSEB initiative aims for standardized and uniform measurement by developing core outcome sets for epidermolysis bullosa. This report describes the COSEB workshop organized in December 2023, which led to a broad stakeholder consensus-based roadmap. Moreover, it highlights novel features of COSEB, including the pro-active engagement of stakeholders from the very beginning and the appointment of a multi-stakeholder advisory panel.
| File | Dimensione | Formato | |
|---|---|---|---|
|
ljae200.pdf
Open access
Tipologia:
Versione pubblicata dall'editore
Dimensione
1.06 MB
Formato
Adobe PDF
|
1.06 MB | Adobe PDF | Visualizza/Apri |
Pubblicazioni consigliate
I metadati presenti in IRIS UNIMORE sono rilasciati con licenza Creative Commons CC0 1.0 Universal, mentre i file delle pubblicazioni sono rilasciati con licenza Attribuzione 4.0 Internazionale (CC BY 4.0), salvo diversa indicazione.
In caso di violazione di copyright, contattare Supporto Iris
