Objectives: In recent decades, the needs of people living with HIV have evolved as life expectancy has greatly improved. Now, a new definition of long-term success (LTS) is necessary to help address the multifaceted needs of all people living with HIV. Methods: We conducted a two-phase research programme to delineate the range of experiences of people living with HIV. The insights garnered from these research phases were explored in a series of expert-led workshops, which led to the development and refinement of the LTS framework. Results: The insights generated from the research phases identified a series of themes that form a part of LTS. These themes were subsequently incorporated into the LTS framework, which includes five outcome pillars: sustained undetectable viral load, minimal impact of treatment and clinical monitoring, optimized health-related quality of life, lifelong integration of healthcare, and freedom from stigma and discrimination. A series of supporting statements were also developed by the expert panel to help in the achievement of each of the LTS pillars. Conclusions: The LTS framework offers a comprehensive and person-centric approach that, if achieved, could help improve the long-term well-being of people living with HIV and support the LTS vision of 'every person living with HIV being able to live their best life'.

Long-term success for people living with HIV: A framework to guide practice / Lazarus, Jeffrey V; Wohl, David A; Cascio, Mario; Guaraldi, Giovanni; Rockstroh, Jürgen; Hodson, Matthew; Richman, Bruce; Brown, Gina; Anderson, Jane; Fuster-RuizdeApodaca, Maria J. - In: HIV MEDICINE. - ISSN 1468-1293. - 24 Suppl 2:S2(2023), pp. 8-19. [10.1111/hiv.13460]

Long-term success for people living with HIV: A framework to guide practice

Guaraldi, Giovanni;
2023

Abstract

Objectives: In recent decades, the needs of people living with HIV have evolved as life expectancy has greatly improved. Now, a new definition of long-term success (LTS) is necessary to help address the multifaceted needs of all people living with HIV. Methods: We conducted a two-phase research programme to delineate the range of experiences of people living with HIV. The insights garnered from these research phases were explored in a series of expert-led workshops, which led to the development and refinement of the LTS framework. Results: The insights generated from the research phases identified a series of themes that form a part of LTS. These themes were subsequently incorporated into the LTS framework, which includes five outcome pillars: sustained undetectable viral load, minimal impact of treatment and clinical monitoring, optimized health-related quality of life, lifelong integration of healthcare, and freedom from stigma and discrimination. A series of supporting statements were also developed by the expert panel to help in the achievement of each of the LTS pillars. Conclusions: The LTS framework offers a comprehensive and person-centric approach that, if achieved, could help improve the long-term well-being of people living with HIV and support the LTS vision of 'every person living with HIV being able to live their best life'.
2023
24 Suppl 2
S2
8
19
Long-term success for people living with HIV: A framework to guide practice / Lazarus, Jeffrey V; Wohl, David A; Cascio, Mario; Guaraldi, Giovanni; Rockstroh, Jürgen; Hodson, Matthew; Richman, Bruce; Brown, Gina; Anderson, Jane; Fuster-RuizdeApodaca, Maria J. - In: HIV MEDICINE. - ISSN 1468-1293. - 24 Suppl 2:S2(2023), pp. 8-19. [10.1111/hiv.13460]
Lazarus, Jeffrey V; Wohl, David A; Cascio, Mario; Guaraldi, Giovanni; Rockstroh, Jürgen; Hodson, Matthew; Richman, Bruce; Brown, Gina; Anderson, Jane; Fuster-RuizdeApodaca, Maria J
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